The patient’s perspective: evaluating the meaningfulness, comprehensiveness, and prioritization of common Patient-Reported Outcomes (PRO) in cardiac surgery

Libin Cardiovascular Institute

Background

When patients have heart surgery, hospitals and doctors collect information that helps tell us how well the surgery and patient recovery, went. Recently, there has been more emphasis placed on outcomes that reflect the surgical experience and quality of recovery from the patient perspective. One way to do this is using Patient-Reported Outcomes (PRO).

There are many available questionnaires/tools to collect PROs. Most are made up of questions and scores which then give a total score reflecting the quality of care and recovery. Most of the PRO tools have not been evaluated by patients to help understand what matters most to them, what pieces are missing, how well hospitals and doctors measure PROs now, and how good (or bad) of a job we are currently doing. This project involves bringing together patients and healthcare providers to review the existing PRO tools and help determine which ones do the best job of measuring what matters most to patients. The results of this would then be used to guide the development and future use of PRO tools that better reflect the priorities of patients having heart surgery.

Roles and Responsibilities

We are seeking PaCERs and patient partners with lived experience of cardiovascular disease (CVD) who can join as a member of our core committee to advise on the project, objectives, timelines, and outcomes. For instance, core committee members will help plan the design of the focus groups and members will be invited to co-facilitate focus groups with patient participants who have had heart surgery.

Time Commitment

This project is anticipated to start May 2022 and continue until May 2023.

Patient partners are expected to contribute to monthly meetings of 2 hours/month for 1 year. Meetings will be both on-line and in-person in Calgary.

There will be additional opportunities to contribute for those interested and available.

Compensation/Reimbursement

Compensation will be offered as per AbSPORU guidelines at a rate of $25/hour.

Reimbursement will be available for travel/parking costs associated with in-person meeting attendance.


For more information or to apply please connect with
Alex Gregory
alex.gregory@albertahealthservices.ca

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CALGARY

University of Calgary Foothills Campus
3330 Hospital Dr NW
Calgary, AB T2N 4N1

EDMONTON

College Plaza
1702, 8215 112 St NW
Edmonton, AB T6G 2C8

Land Acknowledgment

The Alberta SPOR SUPPORT Unit operates on and acknowledges the lands that are the traditional and ancestral territory of many peoples, presently subject to Treaties 6, 7, and 8. Namely: the Blackfoot Confederacy – Kainai, Piikani, and Siksika – the Cree, Dene, Saulteaux, Nakota Sioux, Stoney Nakoda, and the Tsuu T’ina Nation and the Métis People of Alberta. This includes the Métis Settlements and the the Métis Nation of Alberta. We acknowledge the many First Nations, Métis and Inuit who have lived in and cared for these lands for generations. We make this acknowledgment as a reaffirmation of our shared commitment towards reconciliation, and as part of AbSPORU’s mandate towards fostering health system transformation.

 

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