Engagement in Health Research – Literature Explorer

Patient-Centered Outcomes Research Institute (PCORI) – There are no standard search terms or language for describing what engagement in health research means. This means finding literature on engagement can be challenging. PCORI developed a searchable list of publications on engagement in health research to facilitate this search. Click the link to access PCORI Engagement in […]

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PCORI Funded Projects: Sample Engagement Plans

Patient-Centered Outcomes Research Institute (PCORI) seeks to support research that includes meaningful involvement of patients and other stakeholders in all the steps of research. To help understand different models of patient and stakeholder engagement, they selected sample engagement plans taken from actual funded projects. These are provided solely as examples for educational purposes. Click here […]

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Patient and Public Engagement Planning Template

*NL SUPPORT: Newfoundland and Labrador’s SUPPORT for People and Patient-Oriented Research and Trials Unit Patient engagement is about meaningful engagement of patients/public in the research process (not just as subjects of research). This template has been designed to assist with the development of Patient Engagement plans for health research but can be used to plan […]

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Considerations and Templates for Ethical Research Practices (The)

*First Nations Centre @ National Aboriginal Health Organization (NAHO) They developed this resource as a companion document to the first Ethics Tool Kit (2003) that focused on the emerging issues surrounding ethical research practices in First Nations. The most useful feature of this guide is its three templates to assist First Nations in the development […]

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Patient-Oriented Research Checklist

Evidence-Informed Practices and Strategies for Patient-Oriented Research (POR): A ‘Menu’ for Research Teams – BC SUPPORT Unit The purpose of this resource is to support research teams considering or moving into Patient-OrientedResearch (POR) by offering a ‘menu’ of evidence-informed practices and strategies for effective engagement.The term ‘menu’ was selected to represent the flexibility that this […]

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People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada

Breault LJ, Rittenbach K, Hartle K, et al. Research Involvement and Engagement, volume 4, Article number: 37 (2018). The Alberta Depression Research Priority Setting Project aimed to meaningfully involve patients, families and clinicians in determining a research agenda aligned to the needs of Albertans who have experienced depression. This year-long study describes the processes used to ensure the voices […]

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