Patient Engagement, Clinical Trials, and Patient Oriented Research: From the Literature […]
PCORI Funded Projects: Sample Engagement Plans
Patient-Centered Outcomes Research Institute (PCORI) seeks to support research that includes meaningful involvement of patients and other stakeholders in all the steps of research. To help understand different models of […]
Budgeting for involvement: Practical advice on budgeting for actively involving the public in research studies
Cartwright J, Kabir T, Simons L. This resource was jointly funded by the Mental Health Research Network and INVOLVE, which are funded by and part of the National Institute for […]
Patient and Public Engagement Planning Template
*NL SUPPORT: Newfoundland and Labrador’s SUPPORT for People and Patient-Oriented Research and Trials Unit Patient engagement is about meaningful engagement of patients/public in the research process (not just as subjects […]
Engaging Patients in the Research Process: A toolkit for project leads
*Can- SOLVE – Chronic Kidney Disease (CKD) Network. This toolkit contains recommendations for engaging patient partners at the start of a research project. The toolkit’s purpose is to enable the […]
Considerations and Templates for Ethical Research Practices (The)
*First Nations Centre @ National Aboriginal Health Organization (NAHO) They developed this resource as a companion document to the first Ethics Tool Kit (2003) that focused on the emerging issues […]
Patient-Oriented Research Checklist
Evidence-Informed Practices and Strategies for Patient-Oriented Research (POR): A ‘Menu’ for Research Teams – BC SUPPORT Unit The purpose of this resource is to support research teams considering or moving […]
Patient and public engagement in priority setting: A systematic rapid review of the literature
Manafò E, Petermann L, Virginia Vandall-Walker V, Mason-Lai P https://doi.org/10.1371/journal.pone.0193579; March 2, 2018 The purpose of this systematic rapid review of the literature was to describe the evidence that exists […]
People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada
Breault LJ, Rittenbach K, Hartle K, et al. Research Involvement and Engagement, volume 4, Article number: 37 (2018). The Alberta Depression Research Priority Setting Project aimed to meaningfully involve patients, families and clinicians in […]
Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research
Manafo E, Petermann L, Mason-Lai P, Vandall-Walker V. Health Res Policy Syst. 2018 Feb 7;16(1):5. doi: 10.1186/s12961-018-0282-4. Over the last 10 years, patient engagement in health research has emerged as the […]