Patient-Centered Outcomes Research Institute (PCORI) – There are no standard search terms or language for describing what engagement in health research means. This means finding literature on engagement can be challenging. PCORI developed a searchable list of publications on engagement in health research to facilitate this search. Click the link to access PCORI Engagement in […]
Publication list for Training Program & Pragmatic Clinical Trials
Patient Engagement, Clinical Trials, and Patient Oriented Research: From the Literature […]
PCORI Funded Projects: Sample Engagement Plans
Patient-Centered Outcomes Research Institute (PCORI) seeks to support research that includes meaningful involvement of patients and other stakeholders in all the steps of research. To help understand different models of patient and stakeholder engagement, they selected sample engagement plans taken from actual funded projects. These are provided solely as examples for educational purposes. Click here […]
Budgeting for involvement: Practical advice on budgeting for actively involving the public in research studies
Cartwright J, Kabir T, Simons L. This resource was jointly funded by the Mental Health Research Network and INVOLVE, which are funded by and part of the National Institute for Health Research (NIHR). As an NIHR resource, the calculator is in pounds. It highlights important considerations about what might be relevant in any patient-engaged project […]
Patient and Public Engagement Planning Template
*NL SUPPORT: Newfoundland and Labrador’s SUPPORT for People and Patient-Oriented Research and Trials Unit Patient engagement is about meaningful engagement of patients/public in the research process (not just as subjects of research). This template has been designed to assist with the development of Patient Engagement plans for health research but can be used to plan […]
Engaging Patients in the Research Process: A toolkit for project leads
*Can- SOLVE – Chronic Kidney Disease (CKD) Network. This toolkit contains recommendations for engaging patient partners at the start of a research project. The toolkit’s purpose is to enable the project lead to enhance the collaborative experience within his/her team. Click here to download. […]
Considerations and Templates for Ethical Research Practices (The)
*First Nations Centre @ National Aboriginal Health Organization (NAHO) They developed this resource as a companion document to the first Ethics Tool Kit (2003) that focused on the emerging issues surrounding ethical research practices in First Nations. The most useful feature of this guide is its three templates to assist First Nations in the development […]
Patient-Oriented Research Checklist
Evidence-Informed Practices and Strategies for Patient-Oriented Research (POR): A ‘Menu’ for Research Teams – BC SUPPORT Unit The purpose of this resource is to support research teams considering or moving into Patient-OrientedResearch (POR) by offering a ‘menu’ of evidence-informed practices and strategies for effective engagement.The term ‘menu’ was selected to represent the flexibility that this […]
Patient and public engagement in priority setting: A systematic rapid review of the literature
Manafò E, Petermann L, Virginia Vandall-Walker V, Mason-Lai P https://doi.org/10.1371/journal.pone.0193579; March 2, 2018 The purpose of this systematic rapid review of the literature was to describe the evidence that exists in relation to patient and public engagement priority setting in both the health ecosystem and health research. Click here to read the full publication […]
People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada
Breault LJ, Rittenbach K, Hartle K, et al. Research Involvement and Engagement, volume 4, Article number: 37 (2018). The Alberta Depression Research Priority Setting Project aimed to meaningfully involve patients, families and clinicians in determining a research agenda aligned to the needs of Albertans who have experienced depression. This year-long study describes the processes used to ensure the voices […]