Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research

Manafo E, Petermann L, Mason-Lai P, Vandall-Walker V. Health Res Policy Syst. 2018 Feb 7;16(1):5. doi: 10.1186/s12961-018-0282-4. Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, there is limited evidence about the clear role and scope of patient engagement. In the present study the authors […]

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Importance of measuring the impact of Patient-Oriented Research (The)

Aubin D, Hebert M, Eurich D. CMAJ August 06, 2019 191 (31) E860-E864; DOI: https://doi.org/10.1503/cmaj.190237 Many remain unconvinced of the merit of patient–oriented research without evidence of its positive impact on research or health outcomes. … Despite these challenges, we can and should work toward both measuring what is feasible to measure and building a framework for measuring health outcome impact. Click here to read the full publication […]

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Programme theory development and formative evaluation of a provincial knowledge translation unit

Thomson D, Brooks S, Nuspl M, Hartling L. Health Res Policy Sys 17, 40 (2019) doi:10.1186/s12961-019-0437-y Research shows a significant gap between healthcare research and evidence-based healthcare policy and practice. Knowledge translation (KT) has an important role in addressing this gap by supporting evidence-informed healthcare. The KT Platform used a mixed-methods approach to develop their […]

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Patient-oriented pharmacy practice research: Why should we care?

Al Hamarneh YN, Rosenberg-Yunger Z, Saxena A, Waite NM, Dolovich L, Tsuyuki RT Can Pharm J, https://doi.org/10.1177/1715163520909122 Pharmacists deal with multiple competing priorities when practicing to their full scope. Deciding on what services to implement, how best to implement them and whether care processes are effective are key questions requiring evidence to inform decisions. The […]

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Terms of Reference Template

This template can aid research teams and other groups in the co-development of terms of reference with their stakeholders and in particular their patient / public members.   […]

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TCPS 2: CORE-2022 (Course on Research Ethics)

Both internal and external courses can be helpful resources. Online modules for the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS 2) The online tutorial TCPS 2: CORE (Course on Research Ethics) is an introduction to the 2nd edition of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS 2). It consists […]

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National and Global Organizations

Patient Centered Outcomes Research Institute Involve UK Consumer and Community Health Research Network – Australia Public and Patient Involvement Research Unit Can-Solve CKD Network IMAGINE Chronic Disease Network […]

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