CHANGE (Canadian Health Advanced by Nutrition and Graded Exercise) Trial
Speakers: Dr. Doug Klein and Dr. Amanda Radil Description: This video presentation describes the CHANGE Cancer Alberta Research Project, which is a randomized control trial, including its lifestyle interventions and its implementation through the PCN environment. The speakers describe the funding process, current progress, key successes and challenges, and their lessons learned. *Recording form the […]
Advancing the Use of Health Information in the COVID Era
Speakers: Dr. Jeff Bakal and Dr. Erik Youngson Description: The Covid-19 pandemic has changed how we live, work and play. Similarly, the health services and health information has been responding quickly to the changing landscape. While the rapid response has changed the data that is collected, and presented some new privacy issues, it has also […]
Learning Health Systems: Rapidly Improving Patient Care & Workplace Satisfaction at a Lower Cost
Speakers: Stephanie Brooks, Denise Thomson, Dr. Gabrielle Zimmermann Description: In publicly funded health care, we always work towards creating health systems that provide more care and better care, for less cost. Recent efforts have centered around Learning Health Systems (LHS), which aim to integrate health research with health practice by removing barriers and fostering a […]
“Everyone Has a Story” – Town Hall with Dr. Brian Goldman
Moderator: Dr. Brian Goldman | Panelists: Dr. Clare Gibson, Dr. Richard Oster, Dr. Michael Marshall, Ms. Sue Robins This town hall panel presentation explored how storytelling can help us understand our own biases and the perspectives of others as a way forward for improving relationships among clinicians, patients, and researchers, and for improving outcomes and […]
“N of 2”: Transforming health systems through individual action
Presenter: Sue Robins Description: Mother, wife, author and patient advocate Sue Robins shares her ‘why’ and her journey to rediscovering the impact she has as a patient-partner. This presentation includes a short reading by Sue from her book “Bird’s Eye View: Stories of a Life Lived in Health Care”, and will consider how: 1) System […]
AbSPORU Summer Institute Promotional Video
Patient Partner Appreciation Policy and Protocol
SPOR Evidence Alliance
Ethical Considerations for Partnering in Patient-Oriented Research
This document was designed to provide guidance on research ethics requirements for circumstances in which patients are meaningfully and actively engaged as partners in health research activities in roles other than as research participants.
Building Health Research Capacity through Patient Voice
Including the patient voice and perspectives during a public health crisis isn’t a luxury – it is an imperative helping us through this pandemic. Early, large outbreaks of COVID-19 in Alberta were centred on meat processing plants, facilities often employing newcomers to Canada. The Alberta SPOR Support Unit (AbSPORU) Patient Engagement (PE) Platform is supporting […]
Better Information, Better Decisions – AbSPORU Supports Interactive COVID Data Project
Interactive COVID data in your hands Amid the pandemic, it’s important for both public health and citizens to have access to real-time data that provides the number of cases occurring and the age groups it is affecting. The COVID-19 Tracker is an interactive tool created to help ensure Albertans and Canadians quickly see COVID-related changes in their area. […]