AbSPORU is dedicated to transforming health outcomes in Alberta through Patient-Oriented Research (POR).
POR actively engages patients and other stakeholders in research that focuses on patient-identified priorities and improves patient outcomes.
POR is a new direction in health research that requires meaningful and active collaboration of patients in studies that matter to them. This means more clearly focusing on patient-identified priorities and better patient-outcomes.
Patients participate in any or all phases of POR. Along with families, caregivers and communities many other stakeholders also participate in POR including researchers, students, clinicians as well as health and policy leaders.
Alberta needs POR teams that engage patients, have the skills and knowledge to carry out the research, as well as integrate the study findings into practice.
AbSPORU provides expertise in Data and Services, Capacity Development (Training), Patient Engagement and Knowledge Translation to support this important change.
Many sources and types of health data are available in Alberta. The Data & Services Team facilitates access to these data as well as consultation services to support researchers in Patient-Oriented Research.
The Training & Events Team develop training and opportunities to build stakeholder capacity to engage in Patient-Oriented Research. Our POR stakeholders include patients, families, community partners, researchers, students, clinicians, and policy-makers.
The Patient Engagement Team works with stakeholders to include patients at all stages of the research process including to identify research priorities, conduct data collection and analysis as well as share results.
The Knowledge Translation Team works with stakeholders to develop knowledge translation strategies in their research plans and integrate research knowledge into practice.
Alberta has “flattened” the COVID-19 curve, carefully managing the impact of the pandemic on Alberta’s health system by using real-time data and evidence to inform decisions. The Alberta SPOR SUPPORT Unit (AbSPORU) is working with the Alberta Health Services (AHS) Emergency Coordination Centre (ECC) to undertake outbreak modelling, case reporting, and capacity planning, all being used to help coordinate health service operations and optimal patient care options. Jeff Bakal, Program Director, Provincial Research Data Services, discusses how the support provided by the AbSPORU Data Platform has helped the province manage its impressive response to the COVID-19 pandemic. Click here to continue to read…
- AbSPORU Data Platform helping Alberta manage pandemic response
Canadian Institutes of Health Research (CIHR) initiated a Strategy for Patient-Oriented Research SUPPORT Units across Canada. CIHR’s goals were to more directly involve patients and their families in determining priorities for health research as well as participating in the research itself.
AbSPORU is co-funded by CIHR and Alberta Innovates (AI). AI is a provincially funded corporation with a mandate to deliver 21st-century solutions to Albertans by building on our province’s health research and technology efforts in patient and health outcomes.