The Patient Engagement (PE) Platform aims to match individuals with lived experience of health issues, either their own, or as a caregiver, family member or friend, to engage as equal partners on health research teams. Including the varied and valuable lived experiences of those being researched and at all stages of the research process, including research priorities and conduct, data collection and analysis, and the sharing of results, can make the health care policies and practices this research informs more meaningful and relevant to all.
The PE Platform provides ongoing support to patient partners, researchers and community organizations to collaborate on health research priorities and studies. Enhancing the collaboration and capacity of all health research team partners contributes to meaningfully advancing the science and practice of patient engagement.
We’ve put together a small glossary of commonly used PE terms and more information on some of our projects and activities.
The AbSPORU Patient Engagement Platform runs a series of patient engagement podcasts where we talk with experts about everything patient engagement.
Patient Engagement PEP Talks
Coming soon to our YouTube channel.
Patient Engagement Platform Monthly Journal Club Articles
April 2020 “Community initiative co-led with patients could improve care for people with complex health and social needs”
February 2020 “Patient Engagement in research: Early findings from the Patient-Centered Outcomes Research Institute”
January 2020 “Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot”
October 2019 “Patient and public involvement in research: Enabling meaningful contributions”
Albertans4HealthResearch Advisory Council
Our Advisory Council is made up of approximately 40 diverse individuals bringing together the perspectives of patients, caregivers, researchers, organizations and other valued community members to inform and advise on the activities, events and work of the platform.
Connect with us!
Visit our online platform that connects researchers with individuals like you who are interested in contributing to health research that matters to them.
YouTube: Patient Engagement Platform