People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada
Breault LJ, Rittenbach K, Hartle K, et al. Research Involvement and Engagement, volume 4, Article number: 37 (2018). The Alberta Depression Research Priority Setting Project aimed to meaningfully involve patients, families and clinicians in determining a research agenda aligned to the needs of Albertans who have experienced depression. This year-long study describes the processes used to ensure the voices […]
Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research
Manafo E, Petermann L, Mason-Lai P, Vandall-Walker V. Health Res Policy Syst. 2018 Feb 7;16(1):5. doi: 10.1186/s12961-018-0282-4. Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, there is limited evidence about the clear role and scope of patient engagement. In the present study the authors […]
Developing a skilled clinical trials workforce in Patient-Oriented Research: impact of an innovative training approach
King Rosario M, Hebert M, Hill MD, Eurich D, Boesen ME Educ Res Appl: ERCA-155. DOI: 10.29011/2575-7032/100055 August 2018 A blended learning program to develop research capacity in the clinical trials workforce was developed to advance knowledge and skills, provide practical applications, and integrate patient-oriented research into clinical trials. An advisory committee of multidisciplinary stakeholders informed the design, resulting […]
Importance of measuring the impact of Patient-Oriented Research (The)
Aubin D, Hebert M, Eurich D. CMAJ August 06, 2019 191 (31) E860-E864; DOI: https://doi.org/10.1503/cmaj.190237 Many remain unconvinced of the merit of patient–oriented research without evidence of its positive impact on research or health outcomes. … Despite these challenges, we can and should work toward both measuring what is feasible to measure and building a framework for measuring health outcome impact. Click here to read the full publication
Programme theory development and formative evaluation of a provincial knowledge translation unit
Thomson D, Brooks S, Nuspl M, Hartling L. Health Res Policy Sys 17, 40 (2019) doi:10.1186/s12961-019-0437-y Research shows a significant gap between healthcare research and evidence-based healthcare policy and practice. Knowledge translation (KT) has an important role in addressing this gap by supporting evidence-informed healthcare. The KT Platform used a mixed-methods approach to develop their […]
Patient-oriented pharmacy practice research: Why should we care?
Al Hamarneh YN, Rosenberg-Yunger Z, Saxena A, Waite NM, Dolovich L, Tsuyuki RT Can Pharm J, https://doi.org/10.1177/1715163520909122 Pharmacists deal with multiple competing priorities when practicing to their full scope. Deciding on what services to implement, how best to implement them and whether care processes are effective are key questions requiring evidence to inform decisions. The […]
Terms of Reference Template
This template can aid research teams and other groups in the co-development of terms of reference with their stakeholders and in particular their patient / public members.
Patient Engagement in Health Research: A How-to Guide for Researchers
This guide was written for researchers to: Provide key terminology for understanding patient and researcher engagement in health research; Understand benefits and challenges of engaging with patients in health research; Provide examples of how patients and researchers are engaged across the research cycle.
Patient Engagement in Health Research: A How-to Guide for Patients
This guide was written for patients to: Outline the benefits of patients engaging in health research; Describe the variety of ways patients can be engaged; Assess if they are ready to engage in health research; and Provide 5 key steps to engaging in health research projects.
Historical context for Indigenous health in Canada (The)
Presented by Can-SOLVE CKD Network, Diabetes Action Canada, & SPOR