AbSPORU Data Platform helping Alberta manage pandemic response
Alberta has “flattened” the COVID-19 curve, carefully managing the impact of the pandemic on Alberta’s health system by using real-time data and evidence to inform decisions. The Alberta SPOR SUPPORT Unit (AbSPORU) is working with the Alberta Health Services (AHS) Emergency Coordination Centre (ECC) to undertake outbreak modelling, case reporting, and capacity planning, all being […]
How Did We Get Here? The AbSPORU Story – (Opening Panel, Summer Institute 2019)
Summer Institute 2019 opened with a special presentation by AbSPORU leaders Mr. Tim Murphy, Dr. Marilynne Herbert, Dr. Lisa Hartling, and patient partner, Dr. Jane Ross who talked about AbSPORU’s journey.
Empowering Patients as Partners in Research: The Heard and the Unheard Voices – (Opening Keynote Address, Summer Institute 2019)
Hear Dr. Charlotte Loppie (University of Victoria) and patient partner Annette McKinnon talk about empowering patients are partners in research.
Opportunities for Impact Panel (Summer Institute 2019)
Hear Dr. Ginette Salvalaggio, Jerry Jackknife and Keith Miller from the Royal Alexandra Hospital’s Inner City Health and Wellness Program talk about their experiences of a new model of care.
SCPOR Patient-Oriented Research Level of Engagement Tool
This tool can be used to measure the degree to which a project meets the definition of patient-oriented research as described by the CIHR Strategy for Patient-Oriented Research (SPOR). The tool uses five criteria adopted from SPOR published documents and rates each on a scale from 1 to 5. The criteria include: patients are partners, […]
Take your patient partnering to the next level
Health Quality Ontario – based on advice and best practices used by health care professionals and patient partners across Ontario, with direction from Health Quality Ontario’s Patient, Family and Public Advisors Council. Become a leader on your patient partner quality improvement efforts with this quick guide on how to overcome common challenges, including: How to […]
Co-production in Action
The National Institute for Health Research highlights co-production in action. They provide guidance on co-producing a research project by showing how the identified key principles and features are expressed in practice. Click here to download.
Tips for being a patient partner on research teams
Click the link to access the the BC SUPPORT Unit The BC Support Unit provides tips for patient partners over a spectrum of engagement opportunities.
Building a Research Team
Dr. RP Winsett, University of Tennessee-Memphis explores issues in building a research team: What is a research team? Who belongs on your team? Roles and responsibilities? Team meetings?
Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS 2)
The online tutorial TCPS 2: CORE (Course on Research Ethics) is an introduction to the 2nd edition of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS 2). It consists of eight modules focusing on the guidance in TCPS 2 that is applicable to all research regardless of discipline or methodology. The purpose […]