Patient & Family Advisory Council (PFAC) for the Perinatal Brain Injury Lab 

What: The Perinatal Brain Injury Lab is run by Dr. Mary Dunbar,  a pediatric neurologist and researcher at the University of Calgary. We study brain injuries that happen in fetuses, around birth, and in the first month of life. This includes hypoxic ischemic encephalopathy (HIE), stroke, meningitis, and malformations. Our goal is to advance our understanding of these conditions to better inform families and develop better prevention, screening, and treatments.

Who: Our lab is excited to recruit people with lived experience with perinatal brain injury, whether it’s a fetal diagnosis, cerebral palsy, HIE or other perinatal brain injuries.

We’re looking for 5-10 members with a diversity of lived experience and backgrounds

Why: We need a Patient and Family Advisory Council (PFAC) to ensure that the work we do is relevant to the families affected by the conditions we study

When: Monthly meetings for approximately 1 hour, plus a few additional meetings through the year

Where: Most meetings will be virtual, some will be in person in Calgary  for those able to attend, travel will be reimbursed for those outside Calgary

Types of experiences available:
– advise about research projects using your lived experience (no science background needed!)
– provide feedback for grants to fund research projects (no writing experience needed)
– help with learning materials to translate knowledge to ensure they make sense
– help with running research studies that involve patient participants

What we can offer:
Compensation of $35/hour
-Training courses available  (1-3 hours) on patient engagement in research
-A way to use your experiences to improve maternal and pediatric health  research

Kinds of projects wer’re working on:
-How newborn brain injuries (stroke, meningitis) are different in male and female babies
-Family centered neurodevelopment prediction in fetal brain conditions
-Algorithms to treat neuro-irritability in babies with brain injuries
-Systematic literature reviews of fetal stroke, neonatal meningitis, and perinatal stroke

WE WANT TO HEAR YOUR VOICE
For more information or to express interest:
Dr. Mary Dunbar,
pblab@ucalgary.ca


Dr. Mary Dunbar
pblab@ucalgary.ca

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CALGARY

University of Calgary Foothills Campus
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EDMONTON

University of Alberta North Campus
Edmonton Clinic Health Academy (ECHA)
11405 87 Ave NW
Edmonton, AB T6G 1C9

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The Alberta SPOR SUPPORT Unit operates on and acknowledges the lands that are the traditional and ancestral territory of many peoples, presently subject to Treaties 6, 7, and 8. Namely: the Blackfoot Confederacy – Kainai, Piikani, and Siksika – the Cree, Dene, Saulteaux, Nakota Sioux, Stoney Nakoda, and the Tsuu T’ina Nation and the Métis People of Alberta. This includes the Métis Settlements and the Métis Nation of Alberta. We acknowledge the many First Nations, Métis and Inuit who have lived in and cared for these lands for generations. We make this acknowledgment as a reaffirmation of our shared commitment towards reconciliation, and as part of AbSPORU’s mandate towards fostering health system transformation.