Establishing and Evaluating Research-Focused Patient and Family Advisory Councils

Patient and Family Advisory Councils are effective ways to integrate lived-experience priorities and expertise into research studies, programs, and healthcare policy and practice.

This session will discuss suggested best practices, guidelines and shared resources and tools for developing and sustaining Patient and Family Advisory Councils. These include identifying purpose, membership roles, expectations and composition, meeting formats, timelines, and processes, patient research partner compensation, and approaches to evaluating engagement and impact.

Presenters:

• Dr. Jamie Benham
• Halle Deakin
• Robyn Vettese

Questions about APELS? Reach out to Ingrid Nielssen with AbSPORU’s Patient Engagement Team at ingrid.nielssen@ucalgary.ca